Learn how we turn patient engagement into insight using the the Xperiome platform

Xperiome Labs

We take our work seriously and we like to have fun at the same time. Use this space to follow what’s keeping our team busy, what’s on our minds, and the results of our latest projects.


Learn about our sponsored, one-off and longitudinal research studies, and how we collect real-world data that’s not available from other sources.

A Raremark study: What do you think about your sickle cell treatment(s)?

This study aims to learn what people with sickle cell actually think about taking the newer sickle cell medications – Adakveo (crizanlizumab), Endari (L-glutamine), and Oxbryta (voxelotor) – and see how they compare with the older drug, hydroxyurea. This is not like other studies that may only focus on following doctors’ orders.

Hemophilia A/B (without inhibitors) clinical research study
This open-label Phase 3 study will test an investigational medicine called fitusiran, also known in this study as SAR439774 (previously ALN-AT3SC-004).


Discover how we’re making our mark in research and accelerating the development and reach of new treatments.

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