Learn how we turn patient engagement into insight using the Xperiome platform.
Learn about the research studies we conduct with commercial and academic partners, and the clinical trials we support for pharmaceutical sponsors.
Articles and publications
Read our perspectives on news and trends in rare disease, and how patients can be powerful agents of change in health.
January 2021Our CEO Jeremy Edwards shares his reflections on 2020, as well as his hopes for the year ahead
November 2020Most participants in our 2020 survey have no concerns about decentralized clinical trial models. What does this mean for pharma?
November 2020Results from our 2020 survey reveal drivers and barriers to clinical trial participation
Discover how we’re making our mark in research and accelerating the development and reach of new treatments.
A pharmaceutical company commissioned Raremark to survey our sickle cell community to understand how people living with the condition handle their pain crises and hospital visits, and how they would feel about different ways to take or receive a new injectable medication.
A specialist pharmaceutical company commissioned Raremark to recruit a group of people living with pouchitis, a rare gastrointestinal condition, and to track how it affects their lives over a six-month period.
A specialty healthcare company developing treatments for rare diseases sought Raremark’s support for an early-stage pediatric trial program testing an investigational medicine in Sanfilippo syndrome.
A clinical-stage biopharmaceutical company developing treatments for autoimmune diseases brought in Raremark to boost recruitment to a Phase II study of an experimental drug for generalized myasthenia gravis (MG); a super-hot area for clinical research experiencing high competition for eligible patients.
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