Xperiome research, news and case studies
Learn about the research studies we conduct with commercial and academic partners, and the clinical trials we support for pharmaceutical sponsors
Learn about our sponsored, one-off and longitudinal research studies, and how we collect real-world data that’s not available from other sources.
Read our perspectives on news and trends in rare disease, and how patients can be powerful agents of change in health.
October 2020Insights into myasthenia gravis in the words of the people who know it best
October 2020Lessons from Raremark’s day-to-day interactions with interested patients.
August 2020Outsourcing-Pharma interviews Raremark on the launch of the Xperiome knowledge platform.
Discover how we’re making our mark in research and accelerating the development and reach of new treatments.
A pharmaceutical company commissioned Raremark to survey our sickle cell community to understand how people living with the condition handle their pain crises and hospital visits, and how they would feel about different ways to take or receive a new injectable medication.
A specialist pharmaceutical company commissioned Raremark to recruit a group of people living with pouchitis, a rare gastrointestinal condition, and to track how it affects their lives over a six-month period.
A specialty healthcare company developing treatments for rare diseases sought Raremark’s support for an early-stage pediatric trial program testing an investigational medicine in Sanfilippo syndrome.
A clinical-stage biopharmaceutical company developing treatments for autoimmune diseases brought in Raremark to boost recruitment to a Phase II study of an experimental drug for generalized myasthenia gravis (MG); a super-hot area for clinical research experiencing high competition for eligible patients.
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